My Stories
The things I still do
The Hazards Of Drug Interactions With Myelofibrosis
I have been on the drug Minipress (prazosin hydrochloride) for an unrelated problem for many years. It is commonly used as a blood pressure medication, but this is not what it was prescribed for in my case. It is known that it can cause white cell counts to go down,… Continue reading
About Iron, Barriers And Dogs
Some days are good and other days, well, not so good. It really is a roller coaster ride when you have something like myelofibrosis. During my last visit to see my haematologist, I mentioned that we hadn’t done an iron study for a long time. I know why not, there… Continue reading
Boy, That Was Close!
Yesterday, I was having lunch with friends who share my interest in aviation. We were at Jandakot airport, a secondary airport used for training and general light aviation. We sit at a window table usually, as we did yesterday, so we can watch the airport activity going by. You see… Continue reading
The Power Of Nature
Yesterday, we had a huge thunderstorm where I live. I love watching thunderstorms and often take my cameras out to try and get that perfect lightning shot. It didn’t happen yesterday, although I did get a few not so brilliant ones, but it got me thinking again about the absolute… Continue reading
The Vampire Syndrome
As you may know, I am on three weekly transfusions of red cells which, of course,are extracted from whole blood. I have three units each time (that’s what I call the Vampire Syndrome) and I am very grateful to be able to have them. But I very rarely think… Continue reading
Am I A Fraud?
I had a self pity day recently. I don’t indulge myself with these very often. However, things do build up over time and demand release and with me, it’s sometimes a self pity day. Some things are difficult to write about and I find that the darker aspects of my… Continue reading
When Do You Stop Doing The Things You Enjoy?
Hello to all friends and supporters of my website. It is a while since I wrote about my personal journey with myelofibrosis, it is not always easy to put thoughts together that not only help me to cope with this disease, but also, hopefully, help others as well. It is… Continue reading
New Social Area On This Website
Hi Everyone,
This is just a short note to let you know that there is a new social area for you to use. For those who have been here before, you will notice some new pages across the top of the page. Click on the Account page to sign up… Continue reading
My Top 3 Tips For Myelofibrosis Sufferers To Keep Up Morale
Many myelofibrosis sufferers have succeeded at keeping up morale while many others have not. The differences between good results and poor results can often be found in the way the person approaches the challenge. Listed below are 3 ideas to help you be among the list of winners, as one… Continue reading
Determination – You Can Still Do Something With Your Life
- Not long back, my adult son Jeff and I took a trip to a very remote part of Western Australia. It’s in excess of 1000 miles from home, in semi-desert terrain, very remote, very brutal, but at the same time very beautiful too. So what’s this got to do with… Continue reading