Monthly Archives: November 2011
Irish Clinical Researchers Open New Study for Rare but Devastating Cancer
A new clinical study has opened in Ireland for a rare but devastating type of bone marrow cancer. Irish patients with advanced myelofibrosis will have access to a new study of combined oral medications for their disease.

Frank Giles, Professor of Cancer Therapeutics at NUI Galway and Trinity College Dublin,… Continue reading
The Vampire Syndrome
As you may know, I am on three weekly transfusions of red cells which, of course,are extracted from whole blood. I have three units each time (that’s what I call the Vampire Syndrome) and I am very grateful to be able to have them. But I very rarely think… Continue reading
FDA Approves Incyte’s Jakafi(TM) (ruxolitinib) for Patients with Myelofibrosis
(This is exiting news for MF sufferers and their families, friends and carers. The approval announcement has been made earlier than expected and more than welcomed. Now there is something tangible to give us some hope for successful treatment of the symptoms of MF. Let us hope that the… Continue reading
Which chemicals are used in(chemotherapy) to treat non-cancerous diseases?
Diseases or disorders like myelofibrosis, anything to do with bone marrow or just>> any disease that is non-cancerous but CAN be treated with chemotherapy. What would they be and which chemicals are used in treating them?
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Am I A Fraud?
I had a self pity day recently. I don’t indulge myself with these very often. However, things do build up over time and demand release and with me, it’s sometimes a self pity day. Some things are difficult to write about and I find that the darker aspects of my… Continue reading