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Living With Myelofibrosis

Monthly Archives: April 2010

Essential Thrombocythemia-Mayo Clinic

Hematologist Ruben Mesa, MD, of Mayo Clinic in Arizona, provides a comprehensive overview of Essential Thrombocythemia, also known as ET. Dr. Mesa describes the fundamentals of this Myeloproliferative disease, covering symptoms and how it is diagnosed to current and potential future treatment options.

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Is donating bone marrow painful?

My grandmother beat breast cancer in 2001 after a mastectomy and a long road of chemotherapy, the "chemo pill", and radiation. Now, exactly 8 years to the month later, she has been diagnosed with Myelofibrosis. She is 61 years young and very active. I’m visiting my grandparents this weekend for… Continue reading

my mom has a rare disease?

i am 13. my mom has a rare disease called myelofibrosis.that is where your bone marrow doesn’t produce blood cells right,so the spleen has to do it. so the spleen grows large.and eventually the spleen gets so big that it crushes the kidney,liver, spine, and other things.so she has to… Continue reading

Survival Data for Patients Younger Than 60 With Primary Myleofibrosis–Mayo Clinic Proceedings

Dr. Ayalew Tefferi, Professor of Hematology and Medicine at Mayo Clinic in Rochester, MN, discusses the findings of the largest ever study with the most mature data currently available of patients with primary myelofibrosis younger than 60 years. These 176 patients were followed up for a median of 8 years… Continue reading

Does anyone have any comments on this data concerning stem cell research? Embryonic benefits = NONE.?

Benefits of Stem Cells to Human Patients
Adult Stem Cells v. Embryonic Stem Cells
Download This List
Peer-Reviewed References (not a complete listing, sample references)
Adult Stem CellsCancers:

Brain Cancer
Retinoblastoma
Ovarian Cancer
Skin Cancer: Merkel Cell Carcinoma
Testicular Cancer
Tumors abdominal organs Lymphoma
Non-Hodgkin’s lymphoma
Hodgkin’s Lymphoma
Acute Lymphoblastic… Continue reading

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